To Mdavis- maybe you think if we need more than a few hrs. of care to survive ,that we should die? TennCare wants to put Donnie in a 2 star rated facility that is 3 to 4 hrs away from any family member. I have visited several nursing homes. If you’re not there on a daily basic the patient does not get the right care. I have recently found that this facility allowed a patient that was a sex offender to abuse a patient. If this happened she could not yell, or alert anyone.
She is on a ventilator and has a trach and feeding tube & requires 24/7 care. Because of the 3 hrs & 3 min. of care per patient including certified & uncertified care at the nursing facility she will not get “adequate” care. This is not enough for Donnie’s survival. The nurse gets Donnie up ea. morning & puts her to bed by use of hoyer lift, ,connects her to a ventilator ea. night, cleans & takes care of trach, suctions her night & day, The nurse bathes her, puts her on the potty by hoyer lift, If left unattended she will fall off the potty or hoyer & be injured & may bleed to death, communicates with her with an ABC board, make sure her chair works & calls for maintenance when needed, spoon feds her ea. meal since she can’t feed herself, crushes her medicine & admin. thru feeding tube, turns her radio & TV to desired station, brushes her teeth, orders medicine & supplies, makes doctor & lab appt., keeps doctor & family updated, as well as other duties. These are needs anyone would expect to be full-filled if in same situation. We all like to breathe, get up ea. day, go to the restroom, clear throat, bathe, brush teeth, communicate, eat, receive medical attention & move about. These are things the nurse help her with so she can live & have a life that is closer to normal. Nursing homes don’t have the staff for the needs in Donnie’s situation. She will have to lie in bed in a mess all day not being taken to the potty. She will have bed sores or pneumonia from being wet & her self respect taken away. She will be fed through a feeding tube taking one of the only joys she has left, which most enjoy every day. She will not get suctioned as often as needed exposing her to a life threatening situation. With family so far away Donnie will go into deep depression. If her ventilator malfunctions or oxygen get’s disconnected she will smother to death. She can not talk, walk or feed herself, but she has a clear mind & loves to be treated with respect & dignity. Before she got sick she practically built her home and to take her from it would be hard on her health wise & mentally. She has a specially built wheel chair that has a toe pad so she can operate it. She communicated that to take her from her home or her wheel chair (her only means of independence) she would die.
Family members have health situations & it would be hard for them or the limited nursing home staff at any nursing home to provide the care for Donnie that she needs.
To mdavis. We pay our taxes and our taxes go for alot of stuff that is much less necessary. You just might be the next person in this situation.
Well said. Wonderful report.
Ruth Sanders for Donnie Higgins ALS patient
Nice report. Well said. Thanks Todd.
Ruth Sanders for Donnie Higgins