WASHINGTON (AP) – A mysterious brain disorder can be confused with early Alzheimer’s disease although it isn’t robbing patients of their memories but of the words to talk about them.
It’s called primary progressive aphasia, and researchers said Sunday they’re finding better ways to diagnose the little-known syndrome. That will help people whose thoughts are lucid but who are verbally locked in to get the right kind of care.
“I’m using a speech device to talk to you,” Robert Voogt of Virginia Beach, Virginia, said by playing a recording from a phone-sized assistive device at a meeting of the American Association for the Advancement of Science. “I have trouble speaking, but I can understand you.”
Even many doctors know little about this rare kind of aphasia, abbreviated PPA, but raising awareness is key to improve care – and because a new study is underway to try to slow the disease by electrically stimulating the affected brain region.
PPA wasn’t identified as a separate disorder until the 1980s, and while specialists estimate thousands of Americans may have it, there’s no good count. Families may not even seek care because they assume a loved one’s increasingly garbled attempts to communicate are because of age-related dementia, said Dr. Argye Elizabeth Hillis of Johns Hopkins University. Often, it’s when those people reach neurologists who realize they aren’t repeating questions or forgetting instructions that the diagnosis emerges.